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The Adventures of Living with a Disability, Episode IV

The Adventures of Living with a Disability, Episode IV
By: Brad Miles ECNV Board President 

Like the Star Wars saga, the storytelling begins somewhere in the middle.
I remember one of my summer jobs as a teen getting fired after I had been there a week.
The job was not a good fit. I worked in a hospital laundry. It was hot humid and also cold.
I could have predicted I would be fired the first day. This happened when I had my hands in my pockets keeping them warm because they were cold.  My manager told me to take them out. I hindsight, he only wanted to see if my hands were clean and groomed because I was handling hospital laundry. They were clean and well groomed but cold.
I hated the job because I got sick when I went to work and was exposed to humidity and cold.  I was born with an Autoinflammatory condition that I inherited from my father.  It is like an autoimmune condition.  I flare up  with different triggers like cold. It affects me in different ways. Simply said, I feel aweful when I have a flare.
This was not fun as I grew up in the midwest where we walked to school in the snow. Some have called the condition a disease, which has made me in my younger days feel less positive about having it.
I celebrate my disease regardless of what it is called. It's grown with me and I with it.  I have had several adventures and insights that got me where I am today.  They seem to never stop.
Along the way, I have learned to accept what I have after dealing with anger, sadness, depression and a roller coaster of other feelings.
I have been blessed to have opportunities to help others on their own journeys.  My adventures and insights seem to never stop.
Some are more challenging than others.  I have learned we are on this planet for a wonderful ride together. I am now in this adventure with you all at ECNV.
I found along the way there others like me with Autoinflammatory conditions.
August was Autoinflammatory Awareness Month.
http://saidsupport.org/august-is-autoinflammatory-awareness-month/
So stay tuned, as our adventure continues. Please join us and celebrate who you are.
Brad Miles, ECNV, President of Board

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