Every year, ECNV staff and consumers travel to Richmond to meet with legislators in the Virginia General Assembly to inform them about the effects of proposed laws and proposed amendments to the state budget on Virginians with disabilities. This year, we informed them about proposals for CIL funding throughout the state and about proposals to reduce the waitlist for waiver services for people with developmental disabilities, many of whom have waited many years for those services.
We met with legislators (or their aides) who serve the areas where ECNV’s consumers live. We talked to them about our experiences working to support Northern Virginians with all types of disabilities, and staff and consumers alike who have disabilities ourselves spoke of our personal experiences with disability services, with services from CILs that have helped us, with personal care, and with other things that we meant to address.
As often happens, some of the legislators posed for pictures with us, a fun little memento of our time in Richmond and some time to relax. This time, we managed to catch up with Speaker Filler-Corn just as we boarded our bus to leave. We greeted her, shook her hand, and got a few pictures. (But not all of them came out!)
As we have for many years now, we very much enjoyed going to Richmond and advocating for the needs of ECNV consumers and all Virginians with disabilities. IL Day is a wonderful opportunity to talk to the people who set the policy that affect our lives—as well as to catch up with people from other CILs across Virginia. Staff and consumers had a wonderful time!
ECNV has great wheelchairs, scooters, and mobility equipment available for those in need. Contact Selvin Garcia at (703) 525-3268 or firstname.lastname@example.org for more details.
AmazonSmile is a simple and automatic way for you to support your favorite charitable organization every time you shop, at no cost to you. When you shop at AmazonSmile, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that Amazon will donate a portion of the purchase price to ECNV. To shop at AmazonSmile simply go to https://smile.amazon.com/ch/54-1302368 from the web browser on your computer or mobile device. You may also want to add a bookmark to smile.amazon.com to make it even easier to return and start your shopping at AmazonSmile.
ECNV / LEND Satisfaction Survey
If you have received any services from the ENDependence Center of Northern Virginia (ECNV) or LEND, we’d like your feedback. Your input helps improve the quality of our services and ensures we are meeting your needs.
By: Earnst Ilang-Ilang This month, a special day occurs at the very end of February – no, I am not talking about the “Leap Year”, but rather: Rare Disease Day. This important day is meant to raise awareness for individuals and patients living with rare diseases, which account for 1 in 20 individuals living on Earth. Working at the ENDependence Center of Northern Virginia, I have been blessed to meet so many people who continue to live their lives regardless of their challenges – it is truly a testament to their character, as well as their courage to see past their circumstances and hope for better days ahead. Rare Disease Day brings significant importance to my own life, as I live with a condition called Trigeminal Neuralgia – an extremely painful neurological condition that affects the nerve that controls your face: touch, sensation, and pain – all of those attributes are controlled by the Trigeminal Nerve. Trigeminal Neuralgia also has another name: “The Suicide Disease”, due to the fact that it is one of the most painful conditions according to neurologists and pain specialists alike. I still remember the day when it first started…
By: Elizabeth Kumar February is American Heart Month. During this month we are reminded of how important it is to keep our hearts as healthy as possible! Even through limitations, there are ways we can protect our heart. According to the Mayo Clinic, getting as active as possible can improve your mood, increase energy, relieve stress and even increase your self- esteem.
Cerebral Palsey Positive Blog post by: Karen Pleasant Living with CP has never hindered me from accomplishing anything I set out to do and there are no intentions of changing that. Cerebral Palsy Positive was launched out of frustration at the lack of medical knowledge beyond pediatrics. The medical community for some reason considers CP a “pediatric” condition and in the same breath defines it as a “lifelong” condition. The majority of human life is spent BEYOND the pediatric realm which to me makes it illogical that, until recently, the coexistence of the aging process & CP was ignored.
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